[Resource] CCEL Dementia + Decision-Making Project

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The CCEL Dementia + Decision-Making Project is an initiative to support the rights of people living with dementia in making decisions about their care and well-being so that the rights of people living with dementia are respected, and they participate as much as possible in the decisions that matter to them.

It builds on previous CCEL projects, which revealed that there is a need to better engage people living with dementia in decisions relating to their care and well-being.

This project is intended to support people living with dementia, as well as family or friend caregivers and care partners, and health care providers.

Based on the information gathered from all of these perspectives, we developed tools – videos, practical guides, information brochures and decision-making pathways – to share practical and legal information to provide insight on supporting and empowering people living with dementia.

Over the course of this project, we partnered with and learned from people living with dementia, family caregivers and care partners, and health care professionals. This included focus groups, advisory committees, consultations, and a highly attended Dementia Rights Gathering to engaging with people living with dementia, or those who live with, support, or work with people living with dementia. You can access our PowerPoint presentation that summarized themes of participant feedback here.